MCSA NEWS – Online Edition

July 2008, Volume 3, Issue 7

 

INSIDE THIS ISSUE:

Patients Declare Grounds for Medical Skepticism:  Complementary & Alternative Medicine Gaining Popularity

Graded Exercise Recommended for Chronic Fatigue Syndrome

Reconstructive Screws Cause Unexplained Allergy

Health Issues and Environment

The Seven Challenges of MCS

Environmental Causes of Disease Often Missed by Doctors

Mercury Migrates from Dental Amalgams to the Human Body

Kid Safe Chemical Act

Head-In-The-Sand Disorder  A Critical Review of Psychology in Relation to Electrosensitivity

Air Filters Get Clean Bill of Health

Sal’s Place – Encouragement:  Shifting Paradigms

Inside MCS America:  Activist’s Corner

MCS Community News

Featured Research Studies

 

Patients Declare Grounds for Medical Skepticism:  Complementary & Alternative Medicine Gaining Popularity

 

Medical skepticism is defined as doubt in the ability of conventional medical care to appreciably alter health status.  Callahan and colleagues (2008) set out to determine whether medical skepticism was associated with the use of complementary and alternative medicine (CAM).  Their goal was to know more about medical skepticism and other causes of CAM provider use so that conventional medical practitioners can target patients with the goal of improving uptake of so-called “appropriate” conventional care. 

 

According to the National Center for Complementary and Alternative Medicine (NCCAM), CAM is a group of diverse medical and health care systems, practices, and products that are not presently considered to be part of conventional medicine, such as herbal supplements, meditation, naturopathy, and acupuncture.  Callahan found that medical skepticism was indeed associated with CAM provider use. 

 

Patients often turn to CAM when conventional medicine fails or provides dissatisfactory results.  If the care a conventional doctor deems “appropriate” is indeed suitable, patient uptake would be self-evident.  Truly, the only “appropriate” care is the individualized care which returns a patient to good health.  When an individual is ailing, it is natural for them to yearn to get better as soon as possible, regardless of means, and return to living the life they hold dear. 

 

The U.S. Department of Health and Human Services, National Institutes of Health released news from NCCAM on June 6, 2008 entitled, “Time to Talk About CAM:  Health Care Providers and Patients Need To Ask and Tell”.  NCCAM’s mission is “to explore complementary and alternative medical practices in the context of rigorous science, train CAM researchers, and disseminate authoritative information to the public and professionals.”

 

In the news release, NCCAM introduces an educational campaign to encourage patients and their conventional health care providers to openly discuss the use of CAM.  Almost two-thirds of people age 50 or older are using CAM.  Yet less than one-third of CAM users feel comfortable talking about it with their conventional doctors, largely because doctors do not ask and the allotted time given to office visits does not allow for sufficient dialogue. 

 

Conversing about CAM use with a conventional provider is important to ensure safe, coordinated care among all conventional and CAM therapies in use.  According to NCCAM, talking allows integrated care and minimizes the risk of adverse interactions between a patient's conventional and CAM treatments.  Josephine P. Briggs, M.D., NCCAM Director, states, "Giving your health care providers a full picture of what you do to manage your health helps you to stay in control."

 

Doctors are not always willing to discuss CAM, let alone support its use.  MCS America asked patients diagnosed with multiple chemical sensitivity (MCS), chronic fatigue syndrome (CFS), fibromyalgia (FM), and Gulf War Syndrome (GWS) whether their doctors listened and would be open to discussion CAM.  Nearly three-quarters of those interviewed indicated that their doctors would be dismissive of CAM, citing bogus claims such as “lack of scientific evidence”, “ineffectiveness”, or “voodoo medicine”, largely designed by the pharmaceutical industry who has vested financial interests in keeping patients sick in order to sell drugs that manage illness rather than cure it.  Patients less likely to reveal their use of CAM may seek a diagnosis from a conventional doctor and subsequently opt for CAM treatment instead of conventional treatment.  CAM skepticism is as much alive and well among physicians as “medical skepticism” is among patients, and with good reason.

 

Most patients find validation and relief of what ails them when they turn to CAM.  CAM providers honor what a patient conveys about their health and recommend treatments based on an extended examination with copious discussion designed to address the whole person, rather than a single symptom.  Many CAM consultations last an hour or longer with regular follow-up to track progress and make adjustments to treatment programs as required. 

 

CAM is geared towards uncovering and correcting the underlying cause of illness, while conventional medicine applies “Band-Aid” treatment, addressing only the symptoms.  The concept of conventional medicine’s “Band-Aid” approach often leads to a snowball effect.  All drugs have side effects, often leading to additional drugs to manage the outcome.  Many older American take a plethora of drugs, many of which merely manage the effects of one other.  This method of altering the body’s homeostasis and burdening the liver detoxification process increases fatigue and leads to health decline.  CAM on the other hand, works to return homeostasis to the body by correcting the underlying cause of the ailment. 

 

Conventional doctors spend less than seven minutes with each patient, relying heavily on first proving an ailment exists via clinical testing before making a diagnosis or offering any helpful treatment.  The very nature of conventional medicine is evidence oriented and dismisses patient testimony until an ailment is extreme enough to show up on a clinical test.  By the time clinical tests reveal an ailment, it is far more advanced than necessitated.  Major life disruption often occurs, time may have been lost from work or school, and countless “all your tests are all normal; try relaxing a little” reports leave the patient feeling lost, invalidated, and may lead to depression and anxiety in the face of uncertainty. 

 

CAM providers, on the other hand, also base diagnosis and treatment on patient disclosure.  Symptoms are noted, questions are asked, and the whole person is interviewed in a holistic approach.  That often reveals the reason for an illness.  A CAM provider may solve the patient’s chief complaint before the ailment had a chance to worsen, while conventional medicine is still “stuck” seeking evidence to prove the ailment exists.  From the patients perspective, proof is irrelevant.  What is relevant is swift relief. 

 

Ultimately, it is the patient whose body and health is at stake… something the patient owns outright and has every right to command control of.  Patients, therefore, must be empowered to choose between conventional medicine, CAM, and integrated treatments.  Health care decisions need to be returned to the patient.

 

NCCAM says that doctors can help by including a question about CAM use on medical history forms, asking patients to bring a list of all therapies they use (including prescription, over-the-counter, herbal therapies, and other CAM practices), and training medical staff to initiate conversation regarding CAM.

 

Patients can help by ensuring they include all therapies and treatments when completing patient history forms, making a list in advance, and mentioning all therapies and treatments during the examination.

 

Patients who are dissatisfied with conventional medicine are entitled to seek CAM, ought to be encouraged to do so, and must not be pressured to return to so-called “appropriate” conventional care.  Ideally, all forms of care, whether medical, complimentary, or alternative, should be embraced.  Continuing treatments that work, and eliminating those that don’t, can provide for an overall healthier patient.  Unbiased openness between doctors and patients may lead to better quality integrated care.

 

Providers interested in tools and resources, such as wallet cards, posters, and tip sheets, may obtain them free on the NCCAM Web site http://www.nccam.nih.gov or order them from NCCAM's information Clearinghouse at 1-888-644-6226.

 

References


Callahan LF, Freburger JK, Mielenz TJ, Wiley-Exley EK.  Medical skepticism and the use of complementary and alternative health care providers by patients followed by rheumatologists.  J Clin Rheumatol. 2008 Jun;14(3):143-7.

 

National Center for Complementary and Alternative Medicine (NCCAM).  Time to Talk About CAM: Health Care Providers and Patients Need To Ask and Tell.  U.S. Department of Health and Human Services, National Institutes of Healht NIH News.  Retrieved on June 6, 2008 from: 

http://www.nih.gov/news/health/jun2008/nccam-06.htm

 

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Graded Exercise Recommended for Chronic Fatigue Syndrome

According to the Centers for Disease Control and Prevention (CDC), chronic fatigue syndrome (CFS) is a serious illness and poses a dilemma for patients, their families, and health care providers. 

 

The CDC says “a variety of studies by CDC and others have shown that between 1 and 4 million Americans suffer from Chronic Fatigue Syndrome (CFS). They are seriously impaired, at least a quarter are unemployed or on disability because of CFS.”

 

People who suffer from CFS have unrelenting fatigue severe enough to limit the most basic daily living tasks of bathing, cleaning, and dressing.  The CDC cites the following symptoms presentation for CFS:

 

  • cognitive dysfunction, including impaired memory or concentration
  • postexertional malaise lasting more than 24 hours (exhaustion and increased symptoms) following physical or mental exercise
  • unrefreshing sleep
  • joint pain (without redness or swelling)
  • persistent muscle pain
  • headaches of a new type or severity
  • tender cervical or axillary lymph nodes
  • sore throat

 

The CDC lists several possible causes of CFS, including  infectious agents, immunology, hypothalamic-pituitary adrenal (HPA) axis deregulation, neurally mediated hypotension, and nutritional deficiencies.

 

Due to the fact that post-exertional malaise is common in CFS, most practitioners recommend avoidance of exercise and strenuous activity to preserve energy. 

 

However, the Cochrane Collaboration advises practitioners to implement graded exercise therapy, saying that it can be undertaken safely with no detrimental effects on the immune system provided that it is catered for individual physical capabilities and takes into account the fluctuating nature of symptoms. 

 

They do, however, acknowledge that exercise can exacerbate symptoms and may promote immune dysfunction.  Patients with CFS frequently report debilitating exhaustion after a mere few minutes of gentle exercise despite any former athletic abilities. 

 

An individual with CFS undertaking an exercise program should remember to pace their activities and respect their physical and mental limitations with the ultimate aim of improving their everyday functioning, according the researchers.

 

Reference

Nijs J, Paul L, Wallman K.  Chronic fatigue syndrome: an approach combining self-management with graded exercise to avoid exacerbations.  J Rehabil Med. 2008 Apr;40(4):241-7.

 

 

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Reconstructive Screws Cause Unexplained Allergy

 

Unexplained allergies can be annoying, sometimes debilitating, and often frustrating for both doctors and patients alike.  When medical providers cannot find a cause for what they refer to as “vague” and “subjective” symptoms, patients are frequently assumed to be depressed or anxious and referred for derisory psychiatric therapy.

 

However, the failure to find a source for symptoms regardless of how vague and subjective does not in itself repudiate the validity of a true biochemical etiology.

 

Researchers at the University of Athens Hospital provide supportive testimony with a scientific review of a 30 year old patient who complained of inability to focus mentally, rash, chronic fatigue, decreased sex drive, and hair loss.

 

Detailed allergy testing showed a positive value for biodegradable poly-L-lactic acid (PLLA).  As it turns out, the patient had two PLLA screws placed after anterior cruciate ligament (ACL) reconstructive surgery on his knee.  His symptoms began a few months after the surgery and produced a systemic allergic reaction.

Surgeons removed one of the two screws which resulted in marked symptom reduction.  When the remaining screw and screw rests were later removed, all symptoms disappeared and the PLLA antigen level in follow-up allergy testing had diminished.

 

This case has a respectable ending.  But for many who do not receive care at university research hospitals, an obscure allergy to PLLA would not likely lend itself to discovery.  Patients may be left to manage symptoms with pharmaceutical drugs and coping skills instead.

 

Physicians can help by listening carefully to patients, believing what they report, and exhausting all reasonable possibilities before assuming a status of malingering of psychiatric imbalance.    Patients can help by keeping track of new surroundings, changes in diet, new products, and other possible allergic triggers and reporting suspicions to their physician.  It is crucial that patients and physicians work as a health care  team.

 

Reference

Mastrokalos DS, Paessler HH.  Allergic reaction to biodegradable interference poly-L-lactic acid screws after anterior cruciate ligament reconstruction with bone-patellar tendon-bone graft.  Arthroscopy. 2008 Jun;24(6):732-3.

 

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Health and Environment

What you don’t know has power over you;

Knowing it brings it under your control, and makes it subject to your choice.

Ignorance makes real choice impossible.

 

-         Abraham Maslow

 

“If individuals and the public are properly educated about chemical toxicants, they will be empowered with the choice to make decisions to protect themselves and their offspring; without knowledge, the choice is precluded,” says Stephen J. Genuis, a researcher in the Department of Obstetrics and Gynecology at the University of Alberta, Canada.

 

Genuis says recent research demonstrates a definitive link between chemical toxicants and potential health problems, including congenital defects and gynecological disorders.  Nevertheless, Genuis stated, “There has been limited exploration of the relationship between contemporary chemical exposure and reproductive medical issues in mainstream obstetrics and gynecology literature.  Credible scientific study is emerging, however, which raises disquieting evidence about the potential for environmental toxicants to profoundly affect the health and well-being of individuals at all stages of life.”

 

In his peer reviewed article, Health issues and the environment—an emerging paradigm for providers of obstetrical and gynecological health care, Genuis survey’s research exploring the impact of adverse exposure on reproductive health.  He then makes various points that are essential for us to consider in the pursuit of new legislation and better medical care here in America.  Key points covered by Genuis include:

 

  • Over the last half-century, more than 75,000 new synthetic chemicals have been introduced.
  • An ‘innocent until proven guilty’ approach remains in effect for chemical agents; proof of safety is generally not required before products go to market.
  • Adverse chemical agents may be inhaled in many homes, schools, and workplaces.  Various personal care products inflict dermal exposure to chemical toxicants.
  • Although small exposures may seem insignificant, many chemicals bioaccumulate (collect into larger amounts) within the human body.
  • Exposure to some toxic chemical appears to have an impact at seemingly minuscule levels, very much like the reactions reported by individuals with multiple chemical sensitivity (MCS).
  • Xenobiotics (foreign chemicals) can alter communication between cells and disrupt cellular and tissue regulation, often disrupting hormones.
  • Individuals have differing genetic vulnerabilities and may exhibit differing responses to the same exposure
  • Doses of environmental chemicals asserted to be ‘safe’ are based on many assumptions and are typically derived from animal experiments.  It is not ethical to intentionally expose a human to a potentially toxic substance in clinical trials, therefore the actual impact of chemicals on humans has not been evaluated and no claims to safety are warranted.
  • “Vociferous claims that insufficient proof exists to establish a link between common chemical exposure and harm as well as protestations by some industry that the benefits and expediency of chemical use outweigh the risks have contributed to confusion regarding chemical toxicity.”  Vested interests frequently have input into determining threshold levels for toxicants.

 

Symptoms of toxic chemical exposure may range from trembling, seizures, respiratory problems, headaches, and other neurological ailments to behavioral problems and psychiatric illnesses.  The phrase “mad as a hatter” was coined after workers occupationally exposed to mercury exhibited symptoms of mercury poisoning, including trembling and various psychiatric anomalies later termed “Mad Hatter Syndrome”. 

 

Detoxification is utilized by many alternative practitioners as a method of reducing body burden of chemicals and therefore improving health.  Chemicals are broken down by the liver, and excreted in stool, urine, perspiration, and breath.  Genuis cites that preliminary data suggests clinical improvement after detoxification.  However, mainstream medicine has been slow to accept detoxification as a means to health and healing as the profession has repeatedly missed the correlation xenobiotics have to health aliments.  Despite this, detoxification is something that can be employed without medical supervision, though medical supervision is advised.  Many environmental medicine medical doctors employ various methods of detoxification, including sauna, hot baths, colonics, organic diet, fasting, juicing, and other gentle ways of encouraging the body to mobilize and release stored toxicants. 

 

Ultimately, political involvement is needed to legislate tighter regulations and ensure that chemicals are adequately tested before being sold or used in consumer products.  Legislation like the Kid Safe Chemical Act, recently proposed by Senator Lautenberg, is just the beginning.  We all need to become more involved in approaching our legislators to regulate toxic chemicals. For a sample letter to your legislators, see “Inside MCS America:  Activist’s Corner” in the July issue of MCSA News or contact admin@mcs-america.org. 

 

Reference

Genius, SJ.  Health issues and the environment—an emerging paradigm for providers of obstetrical and gynecological health care.  Human Reproduction.  2006.  21(9);2201–2208

 

 

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The Seven Challenges of MCS

 

Multiple chemical sensitivity (MCS), as defined by Spenser et al (2008), is an acquired disorder characterized by recurrent symptoms, referable to multiple organ systems, occurring in response to demonstrable exposure to many chemically unrelated compounds at doses far below those established in the general population to cause harmful effects. One proposed causation is a chemically induced injury of the liver, which may generate injury of the enzymatic detoxification systems, triggering a myriad of end organ responses.

 

In the 1950’s, Theron Randolph was the first to recognize the process that later became known as multiple chemical sensitivity.  Victims suffer negative health effects, such as rapid heart rate, dizziness, difficulty breathing, fatigue, flushing, nausea, coughing, shortness of breath, and seizure activity when exposed to pesticides, fragrances, air fresheners, household cleaning products, cigarette smoke, paint fumes, and many other chemically unrelated compounds found in nearly every indoor environment, as well as many outdoor environments. 

 

MCS results in significant morbidity and mortality, and economic, healthcare, and social burdens.  As many as 13.5% of cases result in job loss and countless costs are incurred seeking out medical interventions, which also burdens the health care system. 

Roughly 15% of the population report negative health effects upon exposure to chemicals, which presents the scientific, medical, legal, and political communities with many challenges.

 

The first challenge of MCS is the persistent difficulty in defining an underlying disease process.  Industry, ready to protect its financial interests in the chemicals it produces, has supported a psychological causation.  This has created a debate in the medical and political communities, which is complicated by the lack of an accepted diagnosis test, such as a blood test, to confirm the condition.

 

The second challenge of MCS is called masking, a process by which ongoing exposures hide the effects of a specific exposure, making identifying triggers and diagnosis difficult.  In severe cases, the patient may be in a constant state of reaction, requiring a controlled setting devoid of triggers to unmask routine exposures over  a period and then diagnose the specific effects of individual acute exposures.

 

The third challenge of MCS is that it is not consistent with current ideas in toxicology, which rely heavily on visible and lethal effects to label a substance as toxic. A new paradigm in toxicology is needed to establish toxic effects at lower, non-lethal doses.  Then, the precautionary principle can be adopted to regulate potentially harmful chemicals when scientific evidence is convincing.

 

The fourth challenge of MCS is a lack of ongoing federally supported research.  The EPA and CDC have been woefully deficient, and according to Spenser, “government funding and support impacts the legitimization of the experiences of millions of ill Americans, independent of whatever the etiology may be.”

 

The fifth challenge of MCS is that policy makers currently fail to regulate a chemical until it is later discovered to be harmful.  Newly proposed regulations, such as the Kid Safe Chemical Act, would place the onus on industry to prove their products safe before they go to market.

 

The sixth challenge of MCS is that it falls within the realm of government regulation, since environmental triggers from air pollution and toxic waste are at fault.  Some have recommended establishing a disease registry with MCS as a reportable condition, while increasing funds and programs and minimizing use of toxic chemicals.

 

The seventh challenge of MCS is that if it is proven scientifically valid, MCS would significantly impact public health. Spenser asserts, “MCS could fundamentally alter our understanding of pathophysiology, affecting disease research design and disease prevention measures.  On a much broader level, the government, private sector, consumers, and general population would be engaged in a partnership that would benefit all of public health.”

 

Spenser concludes, “The question of whether MCS is a legitimate physiologic disease process is, to some degree, only incidental.  Even if MCS does not prove to be the disease its proponents claim, this does not negate the need for appropriate treatment for the illness. The health care system and public health as a whole should respond appropriately.  A public health community that is unable or unwilling at a minimum to contemplate paradigm-altering possibilities neglects its duty. With such significant implications, neglect would be insensitive.”

 

Indeed, many individuals with MCS suffer great neglect at the hands of the health care system.  Often being denied care altogether, those that can find adequate care can rest assured most of it will not be covered by insurance.  The stigma and financial burden of acquiring MCS assures most victims of societal rejection.

 

One has to consider that the nature of MCS, being defined by chemically induced injury by chemicals that are virtually unavoidable, means that you or your loved ones could suddenly become affected.  What then? 

 

We must fight now for funding for more research, EPA and CDC involvement, and tighter chemical regulations.  We must assist and learn from our citizens who have been injured by chemicals.  Our future depends on it!

 

Reference

Spencer TR, Schur PM.  The challenge of multiple chemical sensitivity.  J Environ Health. 2008 Jun;70(10):24-7.

 

 

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Environmental Causes of Disease Often Missed By Doctors

 

Our environment is becoming increasingly more polluted.  Chemical toxicants are nearly impossible to avoid with daily exposure to our own fragrances, personal care products, pesticides, plastics, rubber, glues, office equipment, flame retardants, and a myriad of chemicals that is increasingly called “toxic soup”.  Even those who choose safer, less toxic products are forcibly exposed to the fragrances and chemicals of neighbors, coworkers, fellow students, and others around them. 

 

Unexplained illnesses seem to be increasing in leaps and bounds and include autism, SIDS, fibromyalgia, chronic fatigue syndrome, and multiple chemical sensitivity.  Many have been linked to the environment, yet the connection is largely overlooked.

 

Genuis, a researcher in the Department of Obstetrics and Gynecology at the University of Alberta, Canada, confirms “Environmental causes for familiar medical problems are frequently undiagnosed; it is recommended that, where appropriate, a screening tool for evaluation of environmental exposure to toxics be incorporated into primary care assessment and management of patients.”

 

Genuis’s statement was the result of a patient complaining of depression, emotional instability and various physical symptoms which revealed no objective and diagnosable abnormality.

 

More new health conditions are emerging that cannot be explained by conventional medical wisdom.  Yet all of these ailments have been linked to environmental exposures.  This link is repeatedly missed by doctors.  All too frequently a “garbage pail” diagnosis of anxiety or depression is given while patients’ conditions deteriorate.

 

As it turned out, Genuis’s patient was a hairdresser whose neuropsychiatric symptoms were the result of occupational exposure to hazardous chemicals such as those commonly found in hair spray, lotions, shampoo, and conditioner.  After a leave of absence from her position, she was no longer exposed to occupational chemicals and reported cessation of her symptoms.  Armed with the knowledge to practice exposure avoidance, the patient was able to regain her life.

 

In most conventional medical establishments, the patient would have been placed in a managed care situation in which her symptoms were merely managed with various pharmacological drugs while she was taught coping skills and cognitive behavioral therapy and  continued to suffer. 

 

Genuis hit the nail on the head.  It is crucial, if not critical, to public health that environmental correlates are considered in the face of otherwise unexplained symptoms.

 

Reference

Genuis, SJ, Genuis, SK.  Human Exposure Assessment and Relief From Neuropsychiatric Symptoms: Case Study of a Hairdresser.  J Am Board Fam Pract.  2004;17:136–41.

 

 

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Mercury Migrates from Dental Amalgams to the Human Body

 

After decades of controversy and denial, the FDA has finally acknowledged that dental amalgams are harmful to pregnant woman and children, potentially causing neurological disorders and other health problems.

 

According to researchers in Australia, exposure to mercury from dental amalgams with possible negative health effects has generally been considered to occur via either erosion or evaporation directly from the surface of fillings, followed by ingestion.  When amalgam filings are placed and removed, they release mercury vapor.  Chewing foods also releases mercury vapor.

 

Researchers examined evidence that has now shown that mercury also directly migrates through the amalgam filled tooth and into the body via dentinal tubules.

 

The FDA is scheduled to reclassify amalgam filings by the summer of 2009 as part of a settlement in a lawsuit, Moms Against Mercury v. Eschenbach, filed Dec. 28, 2007, in the U.S. District Court for the District of Columbia, alleging purposeful delays by the FDA in classifying the amalgam.  The judge, Ellen Segal Huvelle of U.S. District Court for the District of Columbia, chastised the FDA for failure to act to classify amalgam fillings.

 

Interesting to note is that the manufacturers of amalgam say it should not be used in children age 6 and under, or in pregnant women.  Yet, the FDA is just now getting around to possibly enforcing this recommendation.  The agency is now considering classifying dental amalgam as a Class II substance, which would enable imposition of special controls to increase safety.

 

Mercury is a known neurotoxin, especially dangerous to young brains during development.  Activists have worked long and hard to gain protection for unsuspecting adults and innocent children. 

The legal settlement resulted in the U.S. Food and Drug Administration has changing its website to include a disclaimer that amalgams “may have neurotoxic effects on the nervous systems of developing children and fetus.”  However they advise people not to avoid seeking dental care and to instead discuss options with their dentist.

 

The effects of mercury are not always immediately apparent and may increase over time.  The aging brain may be increasingly affected.  Mercury may cause a loss of IQ points, fatigue, seizures, tremors, cognitive impairment, fatigue, behavioral problems, and numerous other debilitating symptoms.  It has also been implicated in autism.

 

Approximately 25% of the US population has genetic variants leading to increased susceptibility to the negative health effects of mercury.  Some studies indicate that this genetic variation may be the result of damage by mercury and other environmental toxicants, causing concern that anyone could become more susceptible over time via mercury induced DNA changes. 

 

The good news is that there are alternatives in the form of composite fillings made of glass, porcelain, and other materials that can be used to replace amalgam fillings.  Cost varies from dentist to dentist to replace fillings.  The best recommendation is to do extensive research into the safety protocols for removing amalgams and ensure the selected dentist is familiar with them.  The Holistic Dental Association and International Academy of Oral Medicine and Toxicology offer referral lists to holistic dentists familiar with amalgam removal, as does MCS America.  To view these lists, see: 

http://mcs-america.org/dentistlist.pdf.

 

Reference

Harris HH, Vogt S, Eastgate H, Legnini DG, Hornberger B, Cai Z, Lai B, Lay PA.  Migration of mercury from dental amalgam through human teeth.  J Synchrotron Radiat. 2008 Mar;15(Pt 2):123-8.

 

 

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Kid Safe Chemical Act

 

In a press release from the office of Senator Frank R. Lautenberg, United States senator for New Jersey, Lautenberg introduces the ‘Kid Safe Chemical Act’ to protect Americans from the hazardous chemicals used in consumer products.

 

The legislation, first introduced by Lautenberg in 2005, and now reintroduced along with Congresswoman Hilda L. Solis of the 32nd District of California and Representative Henry Waxman of the 30th  District of California, would amend the Toxic Substances Control Act in various ways. 

 

Manufacturers of chemical substances “distributed in commerce” would be required to certify within one year that their products will cause “no harm” to unborn children, infants, children, workers. or any other sensitive group.

 

Manufacturers would also be required to certify that products for infants and children meet a safety standard that is tenfold higher than the standard established for adults.

 

The EPA would have to systematically review whether industry has met its burden of proof for all industrial chemicals within fifteen years.

 

Hazardous chemicals detected in human cord blood would be immediately targeted for restrictions on their continued use.

 

The EPA would be authorized to require additional testing as new science and testing methods emerge.  This would include new evidence of health effects at lower doses or during fetal or infant development.

 

The Centers for Disease Control and Prevention (CDC) would be required to expand existing analysis of pollutants in people and to help identify chemicals that threaten the health of children, workers, and other vulnerable populations.

 

An Internet-accessible public database on chemical hazards and uses would be started to inform companies, communities, and consumers.  In addition, government funding and incentives would be provided for development of safer alternatives and green chemistry.

 

Many parents have hailed the Kid Safe Chemical Act as a “real solution” to the current problems of environmental toxicity and pollution that have been correlated with increases in autism, asthma, multiple chemical sensitivity, chronic fatigue, fibromyalgia, and other modern day maladies. 

 

The bill would provide a much needed fundamental overhaul of the way the United States currently handles chemical regulation.  It would bring the precautionary principal back into being.  Solis confirmed, "The Kids-Safe Chemicals Act is needed to repair the fundamentally flawed chemical regulatory structure.”

 

At the present time, chemicals are not required to be tested for safety before marketing.  Frequently, testing is only conducted when numerous similar health complaints or deaths are discovered after a product reaches the market.  This sell now, worry later approach has been too little to late for those injured, including workers, children, and other susceptible individuals.  "It is critical that we modernize our nation's chemical safety laws,” said Waxman.  

 

The Kid Safe Chemical Act was introduced on the Senate floor on May 20, and subsequently referred to the Senate Committee on Environment and Public Works.

 

"Every day, consumers rely on household products that contain hundreds of chemicals. The American public expects the federal government to keep families safe by testing chemicals, but the government is letting them down," Lautenberg said.

 

Shocking Statistics

 

Over 80,000 chemicals are used in various products in our homes, yet the Environmental Protection Agency (EPA) has only required testing of 200. This is the lack of testing that has put Americans, especially children, in danger.  This new bill would force the EPA to evaluate every chemical product to ensure its safety before it is allowed onto the market.

 

“A real solution” indeed.  The Kid Safe Chemical Act comes at a crucial time when bisphenol A, found in many baby products, and phthalates, found in dangerous levels in common air fresheners used in the home, have been proven harmful to health. 

 

It’s high time for radical changes in the way chemicals are regulated in the United States!  The Kid Safe Chemical Act holds the potential to be this much needed change.

 

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Head in the Sand Disorder    A Critical Review of Psychology and Electrosensitivity Research

 

Psychology and psychiatry are significantly inventive professions in which every human behavior outside expectation is compartmentalized and labeled as abnormal.  Compartmentalizing the behavior of others helps clinicians to think they understand behavior that is perceived as unusual or is beyond their own realm of understanding. 

 

For example, a psychologist in New York may observe a trembling man in the park “obsessively” moving from tree to tree and breaking a single flower off of each tree.  The psychologist is likely to consider this behavior abnormal.  Depending on other factors, a diagnosis such as obsessive compulsive disorder, delusions, psychosis, or something much less specific like generalized anxiety disorder maybe be suspect. 

 

However, if the psychologist were to simply ask the man what he was doing, it may turn out that the man is visiting from Hawaii, suffers from Parkinson’s, and is in New York for his daughters graduation from college.  The flowers are for his wife to make their daughter a traditional Hawaiian lei.  It is their family custom to select the single best flower from each of dozens of trees to create a perfect lei.  The man’s behavior was very normal and quite acceptable in his culture, yet the psychologist’s perception of the man was of someone who is mentally ill simply because the behavior was unfamiliar to him. 

 

This phenomenon is due in large part to the intimidation people feel when faced with someone who looks different, thinks originally, or has unfamiliar or opposing beliefs.  Fear is a factor in the face of these uncertainties and someone who acts outside expectations presents a frightening situation for many people, including psychologists.  This leads to trying to define the behavior without a full understanding of what the behavior really is.  

 

It is this fear that has lead to the pathologizing of nearly every normal human behavior from grief (depression) to discussing an illness (obsession) to fearing loss of income due to a recession (anxiety) to an asthmatic walking around someone wearing a strong perfume that is triggering an attack (antisocial personality disorder).

 

Pathologizing people who are dissimilar as mentally ill gives the impression that only those who chose conformity are normal, while at the same time oppressing those who think freely.  The majority of so-called mental illnesses in the Diagnostics and Statistics Manual (DSM) are merely figments of clinicians’ vivid imaginations.  Labeling choices and behaviors as disorders only brings solace to the clinician frightened by unfamiliar behavior.  Choice and behavior are relative to the differences in human beings, their individual and inherent nature, and their personalities.

 

Behaviors are the result of normal processes.  Once considered a mental illness, asthma is an example of a physical disorder that results in certain behaviors that are unexpected by others who do not have asthma.  An asthmatic may practice avoidance of fragrances and cigarette smoke which trigger respiratory inflammation.  Homosexuality, a mere choice of sexual partners, was also once listed in the DSM as a mental illness. 

 

However, labeling behavior in one of the classifications in the DSM is currently required for insurance billing purposes.  Statistics are created from this data.  Drugs companies, who often fund clinician’s conferences and provide gifts and promotional freebies, then vie to create drugs to treat these fictitious abnormalities.  Hence, financial motives drive the modern profession.  Labeling and compartmentalizing scrutinized behavior is, in most cases, merely compartmentalizing normal human behavior, which does, after all, increase business. 

 

There is no confirmation that psychological conditions exist.  They are diagnosed based on mere subjective reporting by the patient and subjective observation by the clinician.  There are no scientific, clinical tests to determine beyond a reasonable doubt that an abnormality really does exist.  The DSM is then a sham and the unsuspecting public is the victim.

 

The proposal that psychology be considered a science is attributable to Wilhelm Wundt.  The profession now turns out many peer-reviewed scientific studies which are leading, but inconclusive.  Further, these studies make inaccurate suppositions that fail on their face to take into account all the potential cause and effect scenarios, often placing the cart before the horse.

 

An example is a study that explores the correlations between stress and cancer and then concludes that stress causes cancer simply because patients with cancer frequently report feeling stressed.  It is the professional norm to assume that stress causes cancer, yet cancer is a very stressful disease to have and may indeed be the sole cause of the stress.  Chemotherapy is physically stressful and the uncertainly of impending death and/or imminent financial ruin is stressful.  Inability to work, lack of family support, worry over the welfare of children, and many other factors are capable of increasing stress post-diagnoses.  Yet the profession makes the automatic assumption that stress may cause cancer and fails to so much as even examine the fact that cancer may cause stress.  Cancer patients are then advised by journal reading clinicians to avoid stress and relax to improve their condition.

 

Further thoughtful exploration reveals that stress is a normal human process.  Test subjects placed in sensory deprivation chambers where they floated calmly and peacefully for long periods of time have developed psychoses from lack of stress.  Everyone has stress, both good stressors (eustress) and bad stressors (distress).  Yet everyone with stress does not develop cancer, which is a red flag of contradictory thinking. 

 

The latest example of the profession placing the cart before the horse with leading, but inconclusive, findings was committed by the Department of Psychiatry, Psychosomatics, and Psychotherapy at the University of Regensburg, Germany by Landgrebe and colleagues.  In their study “Neuronal correlates of symptom formation in functional somatic syndromes”, Landgrebe believes that there is increasing evidence for the contribution of emotional and cognitive functions to symptom formation in functional somatic syndromes and symptom manifestation in electrosensitivity and multiple chemical sensitivity.

 

Functional somatic syndrome is characterized by a constellation of symptoms and suffering that cannot be conclusively traced to a demonstrable abnormality as a result of science repositioning leisurely and having yet to detect a biochemical etiology.

 

Landgrebe believes sham mobile phone radiation would induce unpleasant “perceptions”, as opposed to real physical stimulus, in electrosensitive (ES) patients. The tests subjects were exposed to sham mobile phone radiation and heat, which produced unpleasantness that Landgrebe blames as the trigger which generates functional somatic syndromes.  We are lead to believe that this “sham” exposure made the electrosensitive subjects “think” they were being exposed and therefore having a reaction. 

 

The picture is very different when employing free critical thinking.  When we ask what generated the "heat" in these so-called "sham" exposures to mobile phone radiation, we find the heat was likely generated by something electric with an electromagnetic frequency (EMF) that would trigger a reaction in an ES individual, suggesting the exposure was far from a "sham" and therefore, the symptoms far from perceived. 

 

Regrettably, research like this does not actually endeavor to understand how such exposures may "cause" an emotional effect.  Instead it is automatically assumed that emotions cause the effects without coming full circle to explore the other possibility.  This results in frequent unnecessary, and financially lucrative, drugging of patients.  Staunchly standing behind their convictions in the name profits and kickbacks, the evidence that these mind numbing drugs don’t work to improve the subjects ES symptoms is disregarded. 

 

Significantly inventive professions, psychology and psychiatry fail to make the grade once again.  The victims of electrosensitivity, multiple chemical sensitivity and other ailments that they label as so-called “functional somatic syndromes” are left with unproven and pathetically hopeless ideas which do nothing to alleviate their suffering.  The diagnosis given to the profession is “head-in-the-sand” disorder, which seems to be correlated with their research.  Therefore, being a psychiatric researcher causes one to develop head-in-the-sand disorder.

 

Reference

Landgrebe M, Barta W, Rosengarth K, Frick U, Hauser S, Langguth B, Rutschmann R, Greenlee MW, Hajak G, Eichhammer P.  Neuronal correlates of symptom formation in functional somatic syndromes: A fMRI study.  Neuroimage. 2008 Apr 20. [Epub ahead of print]

 

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Air Filters Get Clean Bill of Health

 

The use of portable indoor air cleaners both removes and generates pollution.  Though, most people who use air cleaners do so in an attempt to reduce pollution in the air they breathe indoors. 

 

Many individuals with asthma, emphysema, respiratory disease, and multiple chemical sensitivity rely heavily on air cleaners to improve the air and reduce ailment-related symptoms.  Others use air cleaners to prevent the development of these ailments or for healthier living in the hopes of lessening air pollutants such as wood smoke, pesticides, dryer vent fumes, and other common neighborhood contaminants, which have been linked to disease.

 

Air cleaners break certain pollutants down and generate other pollutants as by products.  This news is rather alarming for many and concerns arise as to whether air cleaners are safe to use.

 

But there is good news!  The pollution generated by air cleaners is far less than the benefits of cleaner air according to scientists at the Department of Civil, Architectural, and Environmental Engineering at the University of Texas.

 

The researchers evaluated HEPA filters, an electrostatic precipitator, and several ion generators to determine whether they produced more pollution or lessened pollution overall.  They found that the pollutant removal benefits of ozone-generating air cleaners may be outweighed by the generation of indoor pollution. 

 

Ozone, which is produced by air cleaners, initiates reactions with certain volatile organic compounds, producing ultra fine and fine particulates, free radicals, and other undesirable substances.

 

The scientists operated five different ion generators, each in a room in the presence of a plug-in liquid or solid air freshener.  These air fresheners are a source of terpene, a toxic substance.  The air cleaners reduced levels of terpene, though formaldehyde increased. 

 

Since air fresheners don’t really eliminate odors in the air, but rather perfume it, the elevated formaldehyde levels can be eliminated simply by tossing the air freshener out in favor of regular cleaning to eliminate odor.  By taking this simple step, toxic chemicals such as terpenes, formaldehyde, and phthalates are eliminated, making the home and office safer for sensitive groups such as women, children, and those with respiratory problems.  Even better news, the air is safer for everyone! 

 

Reference

Waring, MS, Siegel, JA, Corsi, RL.  Ultrafine particle removal and generation by portable air cleaners.  Atmospheric Environment.  2008.  42(20);5003-5014.

 

 

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Sal’s Place     Motivation     Shifting Paradigms

A beautiful life had been destroyed by the forces of nature.  Gale force winds had obliterated everything in the storm’s path, leaving ruins.  A solitary stump lingered, paying homage to what was once a majestic tree.   Now crippled and meager, the tree looked forlorn, and tired; its years of life stripped away to the very core.  Pieces of its flesh lay on the grass, a life shattered.  The tree was defeated.  Sighing, I said a little prayer and pitied what remained of the tree.  I reflected on its previous beauty, now spent and never to blossom again. 

 

I descended the hill past the disabled stump, turning to once again to look and pity the loss.  Only this time, a paradigm shift had occurred.  As I gazed up the hill toward the stump, tears glistened in my eyes.  What I saw was absolutely amazing!  That little foot long stump was stretching out, powerfully reaching high up into the sky for its dreams!  It had not given up at all; it would not give up.  The little stump proudly asserted its right in the world, its place in the sky, its ability to overcome the obstacles placed before it. 

 

Immediately I knew that tree would regroup again, mending its injured limbs and recreating a new life better than the last.  I realized that when an injury or illness occurs, society perceives a handicapped status with diminutive damage.  Then a paradigm shift occurs that provides us the ability to soar above challenges to new heights with enormous power and a stronger core than ever existed before! 

 

That injured tree provides inspiration and encouragement for all humankind when ill and/or disabled by outside forces. 

 

Therefore transform, and reach for your dreams!

 

 

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Inside MCS America     Activist’s Corner

 

Letter to congressional representatives:

 

Your Name

Address

City, State Zip

Phone

 

May 2, 2008  

 

Dear Member of Congress,

 

I appeal to you as a fellow human being to empathize and assist individuals with illnesses correlated with the environment through several specific actions.

 

First, a proposal is needed for new legislation which would ban perfume, fragrances, and pesticides from the workplace, schools, and other public areas.  Studies have linked the health of our 911 heroes, and those with asthma, multiple chemical sensitivity (MCS), gulf war syndrome (GWS), and others disabling illnesses to these chemical exposures.  These chemicals, which are ubiquitous and unavoidable in the environment, are known reproductive toxicants, neurotoxicants, and endocrine disruptors which have been found in each and every study subject of the general population. This legislation would protect the entire population from becoming ill from chemical exposure and enable individuals with the above illnesses to be productive working members of society by providing a safer work environment under the Americans with Disabilities Act.

 

Second, the community direly needs a HUD approved independent living housing community designed for individuals with MCS and others with chemical injuries. Studies have shown that the single most efficacious treatment for these injuries is chemical free home and work environment, yet such housing is rarely available or affordable.  A complex like this is essential in various locations across the United States to enable injured citizens to recuperate and live productive lives.

 

Third, new legislation is vital to protect the public from electromagnetic field (EMF) radiation from cell phones, towers, and Wi-Fi, none of which have been proven safe and all of which are ubiquitous in schools, workplaces, and neighborhoods.  Many studies have documented damage to human cell membranes from EMF, which may in turn lead to poor health and disease.

 

There is a significant amount of scientific research to support the need for these appeals which is available upon request.

 

I hope that the citizens of America can count on your support.  There are many governments and organizations which have already acted on these crucial issues, including recent fragrance free policies in Halifax, Nova Scotia, and California Kaiser Permanente Hospitals, as well as numerous schools around the country. California is in the process of proposing a fragrance free ban in the work environment within the  state.

 

As citizens, we need your backing to safeguard our basic rights to life, liberty, and the pursuit of happiness.

 

Thank you in advance!  I look forward to your reply.

 

Sincerely,

 

This editable letter may be downloaded at: 

http://www.mcs-america.org/lettertocongress.doc

 

 

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MCS Community News

 

Mold-Infested Home Will Get $150,000 Makeover
http://www.cbs8.com/features/special_assignment/story.php?id=131875

 

State, federal officials halt spraying for apple moth
http://www.sfgate.com/cgi-bin/article.cgi?f=/c/a/2008/06/19/BAC211C73N.DTL&tsp=1

 

The CDC issues a public health alert on lead in artificial turf
http://blogs.consumerreports.org/safety/2008/06/lead-in-turf.html

 

Chemical Fallout: A Journal Sentinel Watchdog Report
http://www.jsonline.com/index/index.aspx?id=305

 

KBR accused of chemical exposure
http://www.chron.com/disp/story.mpl/nation/5847385.html

 

After the Flood: Preventing and Removing Mold
http://www.kcrg.com/news/local/20574819.html

 

Competition Bureau sees red over false green claims
http://www.canada.com/reginaleaderpost/story.html?id=04b6eaa7-6b04-4a27-ba01-3f6ae3911717

 

State files $6.5M lawsuit over school's mold contamination
http://www.nj.com/printer/printer.ssf?/base/news-10/1213850282223400.xml&coll=1

 

Mold A Growing Concern
http://www.wowt.com/news/headlines/20554714.html

 

Toxic Toy Legislation
http://www.mauiweekly.com/Malama%20Aina/story7029.aspx

Lab disinfectant harms mouse fertility
http://www.nature.com/news/2008/080618/full/453964a.

Parents sue over baby bottles
http://www.jsonline.com/story/index.aspx?id=763763

 

Some Hormones With Your Perfumed Air?
http://www.thedailygreen.com/environmental-news/latest/air-fresheners-47061704

 

 

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Featured MCS Research Studies

 

Toxicol Lett. 2008 May 16.

Detection of low-level environmental chemical allergy by a long-term sensitization method.

Fukuyama T, Ueda H, Hayashi K, Tajima Y, Shuto Y, Saito TR, Harada T, Kosaka T

Institute of Environmental Toxicology, Ibaraki 303-0043, Japan.

Multiple chemical sensitivity (MCS) is characterized by various signs, including neurological disorders and allergy. Exposure may occur through a major event, such as a chemical spill, or from long-term contact with chemicals at low levels. We are interested in the allergenicity of MCS and the detection of low-level chemical-related hypersensitivity. We used long-term sensitization followed by low-dose challenge to evaluate sensitization by well-known Th2 type sensitizers (trimellitic anhydride (TMA) and toluene diisocyanate (TDI)) and a Th1 type sensitizer (2,4-dinitrochlorobenzene (DNCB)). After topically sensitizing BALB/c mice (9 times in 3 weeks) and challenging them with TMA, TDI or DNCB, we assayed their auricular lymph nodes (LNs) for number of lymphocytes, surface antigen expression of B cells, and local cytokine production, and measured antigen-specific serum IgE levels. TMA and TDI induced marked increases in levels of antigen-specific serum IgE and of Th2 cytokines (IL-4, IL-5, IL-10, and IL-13) produced by ex vivo restimulated lymph node cells. DNCB induced a marked increase in Th1 cytokine (IL-2, IFN-gamma, and TNF-alpha) levels, but antigen-specific serum IgE levels were not elevated. All chemicals induced significant increases in number of lymphocytes and surface antigen expression of B cells. Our mouse model enabled the identification and characterization of chemical-related allergic reactions at low levels. This long-term sensitization method would be useful for detecting environmental chemical-related hypersensitivity.

PMID: 18571882 [PubMed - as supplied by publisher]

 

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Cogn. 2008 Jun 10. [Epub ahead of print]

 
Air pollution, cognitive deficits and brain abnormalities: A pilot study with children and dogs.

 

Calderón-Garcidueñas L, Mora-Tiscareño A, Ontiveros E, Gómez-Garza G, Barragán-Mejía G, Broadway J, Chapman S, Valencia-Salazar G, Jewells V, Maronpot RR, Henríquez-Roldán C, Pérez-Guillé B, Torres-Jardón R, Herrit L, Brooks D, Osnaya-Brizuela N, Monroy ME, González-Maciel A, Reynoso-Robles R, Villarreal-Calderon R, Solt AC, Engle RW.


Instituto Nacional de Pediatría, Mexico City, Mexico; Department of Biomedical and Pharmaceutical Sciences, The Center for Structural and Functional Neurosciences, College of Health Professions and Biomedical Sciences, The University of Montana, 32 Campus Drive, 287 Skaggs Building, Missoula, MT 59812, USA.


Exposure to air pollution is associated with neuroinflammation in healthy children and dogs in Mexico City. Comparative studies were carried out in healthy children and young dogs similarly exposed to ambient pollution in Mexico City. Children from Mexico City (n: 55) and a low polluted city (n:18) underwent psychometric testing and brain magnetic resonance imaging MRI. Seven healthy young dogs with similar exposure to Mexico City air pollution had brain MRI, measurement of mRNA abundance of two inflammatory genes cyclooxygenase-2, and interleukin 1 beta in target brain areas, and histopathological evaluation of brain tissue. Children with no known risk factors for neurological or cognitive disorders residing in a polluted urban environment exhibited significant deficits in a combination of fluid and crystallized cognition tasks. Fifty-six percent of Mexico City children tested showed prefrontal white matter hyperintense lesions and similar lesions were observed in dogs (57%). Exposed dogs had frontal lesions with vascular subcortical pathology associated with neuroinflammation, enlarged Virchow-Robin spaces, gliosis, and ultrafine particulate matter deposition. Based on the MRI findings, the prefrontal cortex was a target anatomical region in Mexico City children and its damage could have contributed to their cognitive dysfunction. The present work presents a groundbreaking, interdisciplinary methodology for addressing relationships between environmental pollution, structural brain alterations by MRI, and cognitive deficits/delays in healthy children.


PMID: 18550243 [PubMed - as supplied by publisher]

 

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J Environ Health. 2008 Jun;70(10):24-7.


The challenge of multiple chemical sensitivity.


Spencer TR, Schur PM.


Environmental health professionals frequently come across a health-related problem with no clear cause-and-effect relationship. A typical case occurs when a person complains of experiencing symptoms, often in an indoor setting, that may vary from vague to severe. Multiple Chemical Sensitivity (MCS) may be a factor at play in some of these situations. The condition is characterized by persistent symptoms that follow exposure to chemically unrelated compounds at doses well below those that have been established individually to cause harmful effects. An understanding of MCS among environmental health and medical professionals is encouraged. The following article provides a review of the current literature about MCS and discusses the difficulties, from various sources, in resolving health complaints that may be caused by. exposure to low doses of multiple chemicals

 

PMID: 18561566

 

 

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Disclaimer

This newsletter is for informational purposes and is not intended to replace the examination, diagnosis and treatment of a licensed physician and no such claims are inferred.  Articles are not necessarily the opinion of MCS America and printing of others’ opinions does not constitute endorsement.  MCS America, Lourdes Salvador, Board Members, and associate members of MCS America will not be responsible for misuse of this information.

 

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